Study follow-up
AbbVie – Accessing clinical trial data
AbbVie recognises that transparent and secure sharing of clinical data enables better understanding of disease and standards of care, which can support future research and build trust in research amongst patients.
As such, AbbVie enables qualified researchers to request access to anonymised clinical trial data, with requests managed through Vivli, an independent and non-profit organisation that has developed a global data-sharing and analytics platform.
More information about AbbVie’s partnership with Vivli can be accessed here.
AbbVie – Plain language summaries
AbbVie recognises that it is important for research participants and their families to understand the outcome of their clinical, and the for the wider public to have trust in the research and its results.
To support research transparency, AbbVie introduced a new template for lay summaries of their clinical trial results, ensuring they are written in plain language to be understandable to people without a medical or scientific background.
You can access and read these plain language summaries on AbbVie’s website.
IQVIA – Patient reported outcomes in prostate cancer research
IQVIA has partnered with Prostate Cancer Research to run a study on how best to communicate patient reported outcomes to people with prostate cancer in an easy-to-understand format.
The study involved people with prostate cancer to co-develop, test and review communication materials, resulting in new patient-information resource sheet that is now in use within the patient community. This resource sheet later won the ‘best use of data visualisation’ award at the 2023 Communique Awards.
IQVIA and Prostate Cancer Research have recently published a paper setting out their approach and the study’s results.
Last modified: 07 December 2023
Last reviewed: 07 December 2023